But really, this is about What Not To Do If You Get Terribly Ill. I'll try not to spoil much.
1) Don't try to pretend it's not happening, especially if the job you're going to every day but can no longer competently do is a matter of life and death.
2) Don't lie to your boss and coworkers, telling them you have to rush to the bedside of a dying relative.
3) If you're rich, hire a freaking visiting nurse already. Don't make your spouse do all the work.
4) Speaking of which, if you're rich, maybe you should move to a part of the country where an illness that compels you to go outside no matter what the weather is won't be as much of a problem. Say, Los Angeles, or maybe divide your time between a nice island off the Carolinas (for the mild winters) and a lovely cabin in New England (for hurricane season).
5) Really, what it all comes down to is a very Zen idea of acceptance, which is not about giving up on change, but about acknowledging reality. The fact is, if the life you had is gone--your old idea of health, of choice, of ability--then you're better off looking at the new reality and making plans around it, rather than pretending you can hold onto what you've already lost.
The impression this book leaves me with reminds me most of The World We Live In
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